Conversations I Wish I Had

Fly, Fly Away

Behind the White Coat

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She looked up from her place in the wheelchair when I walked through the door, tears staining her face.

“Oh, no. Why are you crying?” But I didn’t have to ask. I already knew.

“I am tired of hurting, Doc.”

I knew she was suffering. Since her lupus diagnosis two years ago her life had crumbled. She had been a vibrant, funny, joyful young woman.

Now she was a shell of her former self.

Bloated with an over 100 pound weight gain from the steroids. Hair falling out. Disfiguring skin rashes. In and out of the hospital with infections and blood clots. Kidney damage. Lung involvement. Losing her vision. She was in so much pain that she was wheelchair confined and maxed out on opiates.

We could find NO medication that could bring her disease under control.

She had a physician from every known specialty. Coordinating visits was a challenge…

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This entry was posted on January 24, 2015 by .
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